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Old 09-26-2011, 01:47 PM   #1
JeffS77 OP
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Racing the Elsinore Grand Prix for a Cause

On November 13th at 9:30am I will be racing the Elsinore Grand Prix to raise awareness for Vasculitis and to help raise donations for the Vasculitis Foundation

Ok so a little background on my wife and my story on vasculitis and what has brought us here to ask for donations:

Last fall my wife got very sick after a few xrays her doctor said she had pneumonia. She took it ez for awhile but wasn't really getting better than she started coughing up blood and had uncontrollable nose bleeds so she went back to the doctors. After another set of xrays they found what was in her lungs had now become large lesions and she was admitted right away.

After a CT guided needle lung biopsy and countless test in the hospital for a week they diagnosed her with Wagners Granulomatosis. An auto immune condition where basically her own body was attacking it's own vascular system causing damage to her lungs and sinuses mainly. We where told untreated it has a 80% fatality rate in 2 years (sort of not true/ old information before they started treating it with chemo it was basically a death sentence but now is treatable and many people live a long life ). It currently is not curable but much like cancer is treatable with chemo therapy and high doses of steroids that can put it into remission. For some people it can go away for a life time for others it can be a life of constant chemo treatments. Of course after all the shock we decided to go ahead with treatment.

Well it has been a year now and she is doing well with signs of the disease going into full remission and has been cut way back on all her drugs. The Vasculitis Foundation as been very helpful for us to find others in the same boat as us and support groups. They also are very active in pursuing the research of the disease. And just very recently threw years of research a new drug has been approved by the FDA for treatment that does not have nearly as severe side effects as the current mode of treatment. There also a lot of research going on to find just where/what triggers it in the first place.

That is our story and we really want to help contribute to the foundation that has helped us and so many others with support and connections to much needed specialist.

If any of you are interested in making a donation to the foundation please do so directly to there site. ( on the main page in the upper right is the Donation button. you can donate with credit card on the site or print up the donation slip and mail it in with a check or include card info. )

If you donate online designating it to the Research Fund would be great


we are short on time to get a vendor booth set-up at the event and all paper work involved for us to collect donations directly and get approval from the foundation. so direct donations to the foundation would be great

if you donate and want to make the donation in her honor that would be good to. My wife's name is Nicole Shaffer


If you do make a donation please just send me your contact info via private message on this site or email me at raceforvasculitis@yahoo.com or shffrjeff@aol.com

We would like to send all donators something to recognize their contribution and also include their names on the bike on the side panels and fenders.


Thanks
Jeff

all proceeds are going straight to the foundation. none will be used to pay for any of our expenses.

you can read all about vasculitis and its many forms as well at the on going research into the disease at

Vasculitisfoundation.org


to read more on the race check out lakeelsinoregp.com
( I will be racing the Classic Class 1975-1979 on sunday monring)

JeffS77 screwed with this post 09-26-2011 at 03:00 PM
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Old 09-26-2011, 05:33 PM   #2
GalacticGS
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Good luck with the race!
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Old 09-26-2011, 05:46 PM   #3
JeffS77 OP
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Thank you

we got a few guys over in the local section making donations..glad to get some one from "Racing"
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Old 09-26-2011, 05:53 PM   #4
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My Woman

now to add some pics...cause everyone loves pics

My lovely wife and I, March 2010




July 2010...she is a rider too...well mainly a passanger but she knows how to ride..we did a 4th of July weekend mountain trip (she was soooo pissed i made her wear the knee pads..but when she saw the major rocky trail we had to climb she understood why)..and once the Doc gives the a ok she will be riding along again





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Old 09-26-2011, 05:57 PM   #5
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and The Bike

here is the bike during the semi-resto



and out on the trail




I mounted some real knobbies last night and am going out for a long ride Weds. after work

well time for dinner and then I am running some laps around the track
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Old 09-26-2011, 08:04 PM   #6
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Originally Posted by JeffS77 View Post
Thank you

we got a few guys over in the local section making donations..glad to get some one from "Racing"
Jeff couldn't get the donation on line work..., PM ur paypall info.
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Old 09-26-2011, 08:13 PM   #7
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Danny pm sent
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Old 09-26-2011, 08:24 PM   #8
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Danny pm sent
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Old 09-26-2011, 10:00 PM   #9
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WOW what a great community we got here

Nicole was pretty down today because she just got word that one of her friends from her online support group passed away. he was an older gentleman with a few health problems. We do not know the details yet but......

When I told her about all the great folks on this site making donations it really made her feel better. She said you guys are " So sweet" to be so willing to help out a foundation for a person/people you dont even know... It made her day.

Thanks
Jeff

And dont forget when you make a donation make it in honor of Nicole Shaffer (she is registered with the foundation)
It will help us next year when we request some backing from the foundation for next years grand prix to get a booth/banners etc etc to try to drum up more donations at the track.
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Old 09-26-2011, 10:38 PM   #10
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Done, now get my name on that bike so you'll go faster

Tell Nicole good luck and we're glad she's doing better! Dude, how did you get such a hot wife?
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Old 09-26-2011, 10:44 PM   #11
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Done, now get my name on that bike so you'll go faster

Tell Nicole good luck and we're glad she's doing better! Dude, how did you get such a hot wife?

hell yes will do.

I dont know..I thought she was blind for the first few years
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Old 09-28-2011, 08:29 PM   #12
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Just wanted to say thanks to everybody for their kind and generous donations.

JeffS77 screwed with this post 09-30-2011 at 07:39 AM
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Old 09-30-2011, 07:40 AM   #13
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this weekend will be another training ride..heading to the desert to run miles and miles of sand washes to prepare for the mile long sand straights in the grand prix and to test out some new gearing
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Old 10-27-2011, 12:09 PM   #14
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just wanted to say again you guys are great.

so after dealing with some carb gremlins I finally broke down and ordered an entire new one from sudco. I threw it on late last night and it seemed pretty good..will do some neighborhood test runs today then hit the dirt this weekend
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Old 11-10-2011, 10:05 PM   #15
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Sorry i have not updated the thread lately..but I am bumping it back up

ok if you guys donated to the Vasculitis Foundation for the grand prix I am racing sunday ...let me know. I am printing up some decals for the bike

here is who I know for sure


H8Chains
Nowwhat
GalacticGS
Luv2Race
DannyG

anybody I miseed ??


Thanks
Jeff

I have been a tad busy and have not got to update the racing for a cause thread lately...but will have some pics up Sat. and Sun after the race
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