Racing the Elsinore Grand Prix for a Cause

Discussion in 'Racing' started by JeffS77, Sep 26, 2011.

  1. JeffS77

    JeffS77 cheap bastard

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    On November 13th at 9:30am I will be racing the Elsinore Grand Prix to raise awareness for Vasculitis and to help raise donations for the Vasculitis Foundation

    Ok so a little background on my wife and my story on vasculitis and what has brought us here to ask for donations:

    Last fall my wife got very sick after a few xrays her doctor said she had pneumonia. She took it ez for awhile but wasn't really getting better than she started coughing up blood and had uncontrollable nose bleeds so she went back to the doctors. After another set of xrays they found what was in her lungs had now become large lesions and she was admitted right away.

    After a CT guided needle lung biopsy and countless test in the hospital for a week they diagnosed her with Wagners Granulomatosis. An auto immune condition where basically her own body was attacking it's own vascular system causing damage to her lungs and sinuses mainly. We where told untreated it has a 80% fatality rate in 2 years (sort of not true/ old information before they started treating it with chemo it was basically a death sentence but now is treatable and many people live a long life ). It currently is not curable but much like cancer is treatable with chemo therapy and high doses of steroids that can put it into remission. For some people it can go away for a life time for others it can be a life of constant chemo treatments. Of course after all the shock we decided to go ahead with treatment.

    Well it has been a year now and she is doing well with signs of the disease going into full remission and has been cut way back on all her drugs. The Vasculitis Foundation as been very helpful for us to find others in the same boat as us and support groups. They also are very active in pursuing the research of the disease. And just very recently threw years of research a new drug has been approved by the FDA for treatment that does not have nearly as severe side effects as the current mode of treatment. There also a lot of research going on to find just where/what triggers it in the first place.

    That is our story and we really want to help contribute to the foundation that has helped us and so many others with support and connections to much needed specialist.

    If any of you are interested in making a donation to the foundation please do so directly to there site. ( on the main page in the upper right is the Donation button. you can donate with credit card on the site or print up the donation slip and mail it in with a check or include card info. )

    If you donate online designating it to the Research Fund would be great [​IMG]


    we are short on time to get a vendor booth set-up at the event and all paper work involved for us to collect donations directly and get approval from the foundation. so direct donations to the foundation would be great [​IMG]

    if you donate and want to make the donation in her honor that would be good to. My wife's name is Nicole Shaffer


    If you do make a donation please just send me your contact info via private message on this site or email me at raceforvasculitis@yahoo.com or shffrjeff@aol.com

    We would like to send all donators something to recognize their contribution and also include their names on the bike on the side panels and fenders. :clap


    Thanks
    Jeff

    all proceeds are going straight to the foundation. none will be used to pay for any of our expenses.

    you can read all about vasculitis and its many forms as well at the on going research into the disease at

    Vasculitisfoundation.org


    to read more on the race check out lakeelsinoregp.com
    ( I will be racing the Classic Class 1975-1979 on sunday monring)
    #1
  2. GalacticGS

    GalacticGS 1200 GS Rider

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    In...:thumb

    Good luck with the race!
    #2
  3. JeffS77

    JeffS77 cheap bastard

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    Thank you :clap

    we got a few guys over in the local section making donations..glad to get some one from "Racing" :D
    #3
  4. JeffS77

    JeffS77 cheap bastard

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    now to add some pics...cause everyone loves pics

    My lovely wife and I, March 2010

    [​IMG]


    July 2010...she is a rider too...well mainly a passanger but she knows how to ride..we did a 4th of July weekend mountain trip (she was soooo pissed i made her wear the knee pads..but when she saw the major rocky trail we had to climb she understood why)..and once the Doc gives the a ok she will be riding along again :D


    [​IMG]

    [​IMG]
    #4
  5. JeffS77

    JeffS77 cheap bastard

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    here is the bike during the semi-resto

    [​IMG]

    and out on the trail

    [​IMG]


    I mounted some real knobbies last night and am going out for a long ride Weds. after work

    well time for dinner and then I am running some laps around the track :knary
    #5
  6. DannyG

    DannyG I have the waypoint.

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    Jeff couldn't get the donation on line work..., PM ur paypall info.
    #6
  7. JeffS77

    JeffS77 cheap bastard

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    Danny pm sent
    #7
  8. DannyG

    DannyG I have the waypoint.

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    :thumb
    #8
  9. JeffS77

    JeffS77 cheap bastard

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    WOW what a great community we got here :clap

    Nicole was pretty down today because she just got word that one of her friends from her online support group passed away. he was an older gentleman with a few health problems. We do not know the details yet but......

    When I told her about all the great folks on this site making donations it really made her feel better. She said you guys are " So sweet" to be so willing to help out a foundation for a person/people you dont even know... It made her day. :thumb

    Thanks
    Jeff

    And dont forget when you make a donation make it in honor of Nicole Shaffer (she is registered with the foundation)
    It will help us next year when we request some backing from the foundation for next years grand prix to get a booth/banners etc etc to try to drum up more donations at the track.
    #9
  10. luv2race

    luv2race Confused

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    Done, now get my name on that bike so you'll go faster :lol3

    Tell Nicole good luck and we're glad she's doing better! Dude, how did you get such a hot wife? :sweeti
    #10
  11. JeffS77

    JeffS77 cheap bastard

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    hell yes will do.

    I dont know..I thought she was blind for the first few years :lol3
    #11
  12. JeffS77

    JeffS77 cheap bastard

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    Just wanted to say thanks to everybody for their kind and generous donations.
    #12
  13. JeffS77

    JeffS77 cheap bastard

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    this weekend will be another training ride..heading to the desert to run miles and miles of sand washes to prepare for the mile long sand straights in the grand prix :D and to test out some new gearing
    #13
  14. JeffS77

    JeffS77 cheap bastard

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    just wanted to say again you guys are great.

    so after dealing with some carb gremlins I finally broke down and ordered an entire new one from sudco. I threw it on late last night and it seemed pretty good..will do some neighborhood test runs today then hit the dirt this weekend :clap
    #14
  15. JeffS77

    JeffS77 cheap bastard

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    Sorry i have not updated the thread lately..but I am bumping it back up

    ok if you guys donated to the Vasculitis Foundation for the grand prix I am racing sunday ...let me know. I am printing up some decals for the bike

    here is who I know for sure


    H8Chains
    Nowwhat
    GalacticGS
    Luv2Race
    DannyG

    anybody I miseed ??


    Thanks
    Jeff

    I have been a tad busy and have not got to update the racing for a cause thread lately...but will have some pics up Sat. and Sun after the race :D
    #15
  16. wrk2surf

    wrk2surf on the gas or brakes

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    Good luck !
    #16
  17. JeffS77

    JeffS77 cheap bastard

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    Thanks.

    if anybody is out at the track on sunday I am racing in Race #9 Sunday 9:30am
    #17
  18. NSFW

    NSFW ktm's "the tourist"

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    done.

    and jeff, good luck at the race.
    #18
  19. GalacticGS

    GalacticGS 1200 GS Rider

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    +1

    Have a safe and fun race!
    #19
  20. JeffS77

    JeffS77 cheap bastard

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    bike is ready to rock :clap

    thanks again to all those that made donations...you guys rule


    [​IMG]


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    #20