Radioman Rides the World.......

Discussion in 'Epic Rides' started by Radioman, May 19, 2011.

  1. Radioman

    Radioman Moto rider

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    :thumb thanks so much David :wave CeeCee

    The magnitude of the costs of the disease are staggering, and growing rapidly with our baby boomers and people living longer :deal

    This is not motorcycle related but felt I needed to share it!
  2. Mcgee

    Mcgee Been here awhile

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    It is a very honorable thing you are doing for awareness about Alzheimer's disease. My wife's mother was infected with it for many years before her death. It is truly a terrible disease. Thank you for that, plus the great RR! been following along and really enjoying your adventure's. :clap
  3. Rustler

    Rustler Happy Camper

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    Dedicated to Mark, and all the folks who put their life on hold to care for those afflicted with Alzheimer's, here on the Radioman Network.

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  4. PrtclMn001

    PrtclMn001 Custom User Title

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    I have lurked in this thread for a few weeks now... Honestly, your username was the first thing that caught my attention as a Ham Radio Operator :lol3 (N2ADV :1drink)

    It took me weeks to catch up, but holy cow: talk about a page turner! Having read this thread while on trains, planes, in hotels, at my desk in the office (now that my work travel schedule has calmed down), at home when I should have been doing stuff around the house :D (shhhh), and a few other places I won't mention :deal, I am finally at a place where I feel comfortable humbly inserting a comment in your thread.

    You, sir, are an inspiration and, I dare say, a force of nature. Honestly, I don't feel qualified to go further than that except to say, "Thank you" for taking the time to share your journey. Looking forward to the next installment!

    As a "numbers guy" in my day-to-day life, I will also mention that the figures you showed are the tip of the proverbial iceberg, showing volume and direct costs with a few "indirect" costs thrown in. The secondary costs have yet to really be quantified: time off/wage costs for family caregivers, health costs for family caregivers (read: exhaustion leads to suppressed immune function which leads to illness which leads to more exhaustion, etc), indirect pass-through costs from time off of family caregivers (simplistic example: family caregiver has to miss work, someone has to work OT to maintain production levels which increases production costs which, on some level, gets passed along to the general consumer, etc)... The list goes on and the more you think about it, the more staggering the numbers become!

    Best of luck in your journey, Mark, and again thanks for taking us along.

    -James
  5. Radioman

    Radioman Moto rider

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    James. Thanks for the Post. Indeed this disease has so many costs to families and all of us that it should be a priority!! You are right on with your assessment of the other costs. I quit my career to care for my wife, and the financial burdens have changed my entire life. I am fortunate that we were in really good financial condition and prepared for the possibilities which allowed us to weather the financial impact. That said, our own finances took a huge toll to say the least, and will spend the rest of my working life to try to be ready for retirement. That is a reality for me!

    Thanks for posting! Humbled.

    Mark
  6. steveloomis

    steveloomis Been here awhile

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    Mark, you are Genuine, that comes through loud and clear. Explains the HUGE following. I too am fairly recent in finding you and I am so glad I did. From all the BAD news we get thrown at us every day, it is very refreshing to see honesty, integrity and enthusiasm for life. You could probably solicit funds and just keep on ridin' for us....:D Test that gear, what ever it takes....
  7. Radioman

    Radioman Moto rider

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    Thanks Steve for your comments. Sharing my ride and my life with the ADV community has been great! Thanks for following along.

    I flew back to Washington DC on Friday, and stayed at my Nephews home in Virginia. Was able to spend a little time with Susan and Little Eli. So fun to be around a cute little guy who is so observant and interested.! :clap

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    I have met some amazing people through ADVRider. Has definitely made my life better !! I was able to meet up again with iDave and Julie and there family while I was in Virginia!! Was a real treat for me!! They were celebrating 29 year Anniversary!! (which I missed because I did not see the PM from the morning). But hearty congratulations to you both!! :clap

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    I took the metro into DC on Sunday so that I could meet up with Conor (1Man2Wheels) and Erik (DCRider) for lunch before my conference registration.
    Great to see them both again. Last I saw Conor was South America then Florida last summer!

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    Erik Rolled up on his 72 Triumph 650 Bonneville :deal Awesome!

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    The next few days will be packed with reconnecting with other Alzheimer's Advocates from around the US, preparing for Capital Hill visits on Wednesday. Always a draining but rewarding time fighting for Alzheimer's Causes.
  8. 1Man2Wheels

    1Man2Wheels Been here awhile

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    Great to catch up with you again Mark. Best of luck with your work in DC this week and I'm looking forward to the continuation of your travels in the wider world!

    Conor
  9. prophog

    prophog Adventurer

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    Mark
    It's so hard not to become enraged over this disease (A/Dementia) my mother now in a home 3 months after 5 years home care my dad in care home 3 years now hospice is helping my wife now living with her mother and father .
    All one can do is love cry and do your best.
    You have earned your time
    No regrets:1drink
  10. Tijustme2

    Tijustme2 Been here awhile

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    Mark, I too have been following your trip for months now. And you are most certainly a HUGE inspiration. I haven't commented until now, but I want you to know how much I appreciate each update/post/photo. I, and I'm sure thousands of others lurking like I have been, live somewhat vicariously through your adventures.

    I have been my mother's caregiver for the past two years until last week, when I finally had to place her in assisted living. It is terrible to witness the decline of a loved one to this disease. It certainly does take a toll on the caregiver also, as you must know only too well. But after a recent hospitalization, and the tremendous improvement that she made in rehab, I determined that it was in her best interests (and mine) to find a different solution.

    An acquaintance whose wife is afflicted with Alzheimer's, when suggesting that I place my mother in an assisted living facility, put it this way; he said it's not what you are doing TO her, but rather what you are doing FOR her. I now agree, but I had to overcome guilt in stepping away from relinquishing her daily care somewhat.

    And there is, I'm sorry to admit, mixed emotions besides guilt associated with caregiving-selfishness, resentment, among others.

    But you sir, with your travels do provide hope and faith that a new day, yes even a new chapter, is ahead. I look forward to my own 2-wheel adventures. Keep up your good efforts, and safe travels. I salute you!
  11. Radioman

    Radioman Moto rider

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    Dave- it was a pleasure to see you and Julie and your part of your family!!! If your kids go traveling that would be great :D


    and

    My heart goes out to Ann and Paul as they know first hand how difficult Alzheimer's Disease is. The emotional pain of watching your loved one be devastated by this disease, and not being able to do anything to solve it. It takes a toll on everyone in the family. I used to have people ask me all the time "does Chris recognize you?":cry . and my answer was always (I do not know, But I recognize her and I love her" one of the best complements I ever received was a woman that came to the Care Home Chris was in (She had Brain cancer but was very lucid for a short time). One day I arrived, like every other day, and she said, "Mark, when you arrive Chris glows" :deal Staying engaged with your loved one does make a difference!!

    Please Tell Ann and Paul the next time you see them. Big hugs from Me!
  12. Radioman

    Radioman Moto rider

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    My heart goes out to you and your family! I am enraged and that is why I knew I needed to keep doing this kind of Advocacy, because without it nothing in our system would change.
  13. Radioman

    Radioman Moto rider

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    Thank You!

    My heart goes out to you and your mom as well. Caregiving is one of the most difficult jobs in the world. But I cannot think of anything more honorable than being able to care for a loved one and make their lives better.

    * needing to place a loved one in a care facility is one of the hardest decisions and actions that a caregiver is faced with. But your acquaintance is right. I see it as compassionate care. At some point having others help with all the basic care allows a loved one and caregiver to focus on Loving the person like no one else can. And being alive to actually do that instead of burnt out or having serious personal health issues due to the stress and strain of caregiving .

    Caregiving is not for the weak. It is full of so many emotions, strains that really can take a toll if you do not take care of yourself along the way!


    Ride Safe! :ricky
  14. TowPro

    TowPro Lets ride

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    Mark, your conference made the news up here in Phila this morning. They showed Glen Campbell and his daughter Ashley as she spoke. I was looking for you, but it is kind of hard to stop looking at Ashley :D
  15. Radioman

    Radioman Moto rider

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    The reason I came back was to continue to raise awareness and fight for the need to proper funding of the most expensive disease in America.

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    David Hyde Perce is also an advocate as he lost members of his family to Alzheimers.

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    As we gathered we had speakers to inform us about the newest issues with Alzheimer's disease, research and public policy. over 900 advocates from all 50 states came to go to Capital hill!

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    Frances Collins who is the head of NIH (national Institute of health) spoke as well as many others.

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    Debbie Stabenow of Michigan

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    It is a worthy cause to fight for, and cupcakes to celebrate being here.

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    We also have other advocates share why they are here. Lucien is from Mississippi and I have know him now for 5 years. He was continuing to fight for his parents and wife who died of Alzheimer's.

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    One morning I had time to take a walk around washington. So much history in all the memorials.

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    And then the sadness of so many young men that died in Vietnam :cry

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    And then a walk near the White House. Security is very evident after the Boston tragedy

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    We wrapped up of work in washington with a full day on Capital Hill. Meeting with all the representatives of my home state of Oregon. Urging them to prioritize Alzheimer's Disease research so that we can find a cure. Helping our country, reducing the staggering costs and helping our families impacted by this disease.

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    As we walked up to the Capital, I met a Capital Policeman named Duqky. He rides a motorcycle with purple flames in Honor of his grandmother who had Alzheimer's. He gave me a Capital Police badge for my riding jacket!

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    Here are the people from Oregon that joined us this year on this fight!

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    and I could not help but do a jump for the cause!

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    It was a emotional time as I shared my story about caring for and losing Chris :cry to the disease and also shared in the pain and emotions of so many other people advocating on behalf of their families! Left Washington tired out, but glad I was there to share in the fight.


    Now back to Portland to see family and friends for 10 days before getting back to my bike which should now be in Australia. :ricky
  16. Scott_PDX

    Scott_PDX Leisure Engineer

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    Way to go Mark!<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:eek:ffice:eek:ffice" /><o:p></o:p>
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    The Alzheimer's cause wasn't really on my "radar" until I read your story and followed your journeys. Heck, I didn't even realize there was a "color" for the cause. It's obvious to me now that there is a great cost now and in the future for this disease and I'm much more aware of it now than if you weren’t an advocate. <o:p></o:p>
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    Regardless, welcome back home, you couldn't have asked for nicer weather! <o:p></o:p>
  17. SavannahCapt

    SavannahCapt Been here awhile

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    +1:deal
  18. WeazyBuddha

    WeazyBuddha Carbon-Based Humanoid

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    Mark,

    I've been following you along, thanks for all the work you put into the RR. It can't be easy and it is much appreciated.

    Regarding Alzheimer's, do you know if there are universities that are known for their work with the disease?

    I'd be interested in knowing as we are about to start up a medical school here in South Texas and I want to plant a bug in our president's ear who, BTW, is a motorcycle guy but only nominally as he is so busy his bike has been dormant for years now.

    The university I work at and one other, much smaller, will be dissolved and reconstituted as one university that will include a medical school. It's going to take years to get the medical school really going though.

    My sense is that the focus here will be on diabetes and obesity as those are common problems in this region. However, Alzheimer's would be a good fit also as we get many older persons that Winter here in South Texas and many of them stay; the medical school would have an excellent group to work with.

    Looking forward to the continuation of your trip :thumb
  19. C-Stain

    C-Stain Accredited Nincompoop

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    Love the pics from your work on the hill. :thumb

    You are an incredible individual, Mark.

    :clap
  20. Idahosam

    Idahosam Set Adrift

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    Mark

    As you well know, I've stated this many times in our conversations, You are a Great Ambassador and inspiration for the many. As IDave shared the story of his "client" you helped in ways you not aware of by allowing them to open-up through "self disclosure" that in and of itself has an immense healing power. What you share with the world has a healing effect in many many ways. I remember my grandmother slipping away to this terrible disease in the late 70's


    I like this Shot, it's so you!
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    Safe Journey's and spreading the word.

    I'm here just lurking...:hide