What the hell? or 70+mph bike vs Barbed Wire Fence (updated with bike pics)

Discussion in 'Face Plant' started by trc.rhubarb, Nov 22, 2016.

  1. trc.rhubarb

    trc.rhubarb ZoomSplat!

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    MRI was done last Friday, met with Neurosurgeon and Neurologist yesterday (for about 2 hours of odd tests and questions) with not a lot of new info gained from the MRI. By their accounts, I'm better and whatever issues I have now are a mystery. So she's setting me up with 3 specialists and some blood tests. They wanted me to try some bad stuff like Lyrica but I requested we wait until we know what it is vs throwing stuff at it. Theories about and none seem correct but in their defense, one is a brain doc and one is spinal; so the specialists may have a better idea. No idea how long that will take. Oh, also they want to MRI my brain. I don't like the sound of that because I'm concerned about what they're looking for but won't tell me.

    So, we run the range from MS, Fibromyagia, Diabetic Neuropathy, Small fiber neuropathy, Thyroid disease, and my personal theory which is soft tissue damage, limited activity for 191 days now and new posture due to changes in my spine.

    I guess we find out but their stuff is a bit batty... well except MS which hopefully was truly ruled out by the MRI since no abnormalities were found. That's what I think they are wanting a peek inside my skull for though.

    They did tell me I'm 100% clear to go try to get better. Meaning I can exercise and the pain is just pain, not further injury. It may be real or simulated pain but either way, they don't think I'll get worse. So I'll try to do a little more each day and see what happens.
  2. mikegc

    mikegc Long timer

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    Man, you've had a rough time! Obviously, I've been following your thread and am very glad you're recovering. Reading this and the trials of ErikMotoMan, I just ordered a Helite Adventure Airbag jacket. At my age, almost 70, I need all the protection I can get.

    Mike
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  3. HardWorkingDog

    HardWorkingDog Harvey Mushman

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    Wow, I guess that's good news. Sorta.

    My oldest daughter has chronic pain from a botched surgery several years ago, and she's been through every diagnosis and therapy attempt listed in your first 2 paragraphs. Short story: drug therapy has been uniformly unsuccessful, no matter what diagnosis flavor of the month they're attempting to deal with.

    I wish I had something more to offer...chronic pain sucks, plain and simple. You've got friends here, even though we haven't met. If you need anything...let us know.
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  4. trc.rhubarb

    trc.rhubarb ZoomSplat!

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    Thanks! I do appreciate it.

    And I'm sorry to hear about your daughter. I'm sure that's worse than having the pain yourself.
  5. RidingMann

    RidingMann In training...

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    I'm no internet doctor BUT...

    While I was playing the stupid insurance game waiting for approval for my surgery, I took lyrica. While it does offer some pretty bazar side effects (mostly for extended dosings), it really helped my nerve pain. It's not a narcotic so, you'll be mush less likely to have dependency issues. I had to start and stop it a few times due the insurance company being dicks... (I couldn't swing it financially at the time, it's NOT cheap) Never had any problems other than pain returning when I stopped.

    I would suggest you give Lyrica a bit more consideration, if the doc is offering it. It worked fairly well for me... until that damn steroid injection!
  6. trc.rhubarb

    trc.rhubarb ZoomSplat!

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    If I thought I had Fibromyalgia or MS like the doc I won't be seeing again thinks, I would consider it but when she, after meeting me for 15m came up with this diagnosis, I'm a bit skeptical. :D I'm going to wait to see some specialists just in case. Lyrica seems to be a godsend for those that need it but it can be a pretty nasty drug and I'm already on a couple that just might kill me.

    I've been trying to kick my ass since they tell me I can't make it worse and while it's not making me any better physically, it is making me better mentally. But then the physical pain is bad because after almost 200 days of nothing, I have two modes. On and Off. So I keep working in the garage until I can't function. Then I drag myself into the house and try not to sound like a wounded dog. :gerg Tonight it was 6pm-945pm. Tomorrow will suck but I don't care and will do it all over again. I'm hoping the activity will help and it's nice to be productive.

    I managed to tear the DRZ down to just the motor, wiring and radiators left in the frame, grease all the bearings and do a bunch of other crap to it so that when I can ride, I can just ride it. It's almost back together now. Glad I did it, turns out it was a mess and it really needed a lot of grease and cleaning.

    I've even gone into the office 2x this week. I can only do about 3-4 hours before I have to leave but it's good to see people. Redwood run is this weekend, friends are stopping by on Friday to say hi as they pass through. I'll miss it but there will be plenty more.

    Oh, got an interesting dilemma that I have to solve by the weekend. One of the guys that works for me has 3 bikes that haven't been ridden in over 6 years (when his first kid was born). His wife is evicting 2 of them and since they've not been run in 6 years, CL is becoming a hassle. He's offered 2 of them to me for $200... well, a Ninjette 250 for $200 and it comes with a free Katana 750. Both ran 6+ years ago but need tires, carb cleaning, batteries, hoses, etc... Sounds like it could be fun to fix them up and pass them on to someone for cheap... also sounds like something that may just sit in the corner for 10 years :D But a cool deal none the less. Both clean titles and registered planned nonoperational which is important in CA... means no back taxes are due.
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  7. aldend123

    aldend123 Long timer

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    Will half of one suffice? Best to keep the dosage as low as possible.
    In my opinion, the real or simulated quickly becomes blurry after the initial injury. If you sprain your ankle, you know you hurt the moment you put weight on it. Later it swells, and reminds you it's there. You watch TV and it helps distract you. You turn off the TV. The swollen ankle becomes your new prominent focus until you can detract yourself again. You can see it's swollen, and you know you can't put weight on it, so why does the distraction work? Does that mean it isn't real?
    While I did not have a 70mph motorcycle crash, I read your posts and am reminded of some similar experiences. Is your remaining issue primarily with your back?
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  8. trc.rhubarb

    trc.rhubarb ZoomSplat!

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    All very good points. I'll try to answer as best I can.

    Opiates - for me these are very dangerous. I know they were dangerous for my father and his brother as well. I don't know about other males on that side of the family and my brother seems to have no issue. Just answering this question has me thinking about them. I know the names, the dosages and I know how to get them even though I've never abused them. I have taken them in the past when I've convinced myself I need it. So I guess that is abusing but never to a state where It was... dammit, writing this out makes me realize I was going to say never to a point they controlled my life. What I should say is never to a point they negatively affected my life, but if I'm to be honest with myself, there have been times that the opiates were in control. They flat out scare me and while I will take them if the pain is enough, I prefer to suck it up if I can. The rub is, they give you some really nice stuff intravenously and once that starts, the pills are easier to accept and it can snowball from there. I'm lucky enough that I have a need to be in control 99.9% of the time, so while I might let go for a minute, I crave the control more than I crave the pills. Even the thought of 1/2 a pill makes me want to go get one, even after writing all that... I won't but I imagine it's something like what a smoker goes through when they try to quit.

    Pain - some funny stuff there. Sometimes, I like pain, but I don't like back pain ever. I am ok although not thrilled with the idea that I have something chronic but I want them to do the tests first, treatment after if required. Before the accident, I worked hard to get myself healthy again... I'm getting close to being in place I've not been in since the late 80's. Right now, I'm maybe 1991 and that's huge. It's letting me reduce and hopefully get off some nasty diabetic meds, one I have to inject daily but has a list a mile long of how it might not kill you now, but it will probably get you eventually... the upside being that without it, I couldn't get healthy and the diabetes would have killed me. If I have to add pills, I will but I just want to be sure. Now that they tell me it's just pain and not a signal of danger, I'm doing my best to push myself to complete failure every day. It doesn't take a lot but I have surprised myself and have on a few occasions, found myself doing something I can't do; like picking up a bolt off the ground that I just dropped. Didn't even realize I did it until I was back upright. Like the coyote, I didn't realize I was violating reality until I was already doing it, but unlike the coyote, bad things didn't happen later. Anticipation of pain sucks and that's what I need to figure out. How much do I hurt because I know it's going to hurt. None of it's real right? But as long as it's just hurting because it hurts, not because something is breaking, then it's a lot easier to swallow. I prefer to distract myself with other things and right now, that's been working on my DRZ. I'm almost done there and then I'll need to find a new distraction. Hiking would be awesome but I can't hardly walk on any sort of sloped surface. I'll start with walking the neighborhood and see where that gets me.

    Issues: primarily it's with my back but when my back gets acting up, I lose strength in my legs, arms, hands, etc... yet no recorded injuries above t-11 so this has them thrown for a loop. No stenosis or other nerve impingement that they've found. Hands are constantly pins and needles and if it gets bad enough, I can't type or grip things... hence lots of dropping of bolts, nuts, tools. I have balance issues, often falling into a wall but not to the ground. I have syncope often and in clusters that isn't related to sitting, standing, or any activity. Oh and the bugs... I have the meth bugs. Not all the time but holy crap when they show up! I forget words, things keep falling off the 'tip of my tongue' and I get odd bouts of tinnitus that goes away. There's a spot on my neck that when touched sends a weird sensation all the way up the side of my head, behind my ear. Yes, the pain is bad but the package I got leads me to the biggest issue; depression. They tell me there's nothing wrong (that they can find) and yet I'm like a kid in an old man's body. My brain thinks I'm 18, my body thinks I'm in my 70's and my brain is all over the place depending on if it's behaving or not. I've had one brain scan done and they say I have/had no TBI but it sure seems like it. Some days are dark, some days are dim, few days are bright.

    Today I hosted an after hours work social for my team who I haven't seen much of lately and after 4.5 hours of sitting in a hard chair, I could barely get up or walk. Then I got on the bike and I felt agile, in control, back to myself and "human" again. It was great. But I can only ride for about 10-15m before the pain is too great.

    I knew this going into recovery that the biggest obstacle I have to overcome is my brain. Even if the pain is real, I can learn to shut it off. In order to do that, I have to shut off the devil in my head that's bent on my destruction. When I can overcome that hurdle, the rest will become 'easy' to tune out. Once you let that demon in, it grows roots and really messes you up. "The Babadook" is a movie that addresses this in guise of a thriller/horror movie but does a great job of illustrating the power that the demon has. Just a side note: I don't want confuse these demons with any sort of theology. I use the word because it was one of the few good lessons I got from a therapist many years ago, before I found riding was much better therapy.

    A ton more than you asked, I apologize for the droning on and on but writing it out is both therapeutic and a reminder for myself later. Often, since the injury, I will find myself reading something and not even realizing it was me that wrote it. This leaves me a bit perplexed but sometimes, it helps me remember to suck it up.

    Thank you for the opportunity to ramble and to lighten my load a bit. :beer
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  9. mikegc

    mikegc Long timer

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    You're not rambling. This is a lesson for all reading this thread as it can happen to us. We all choose to ride motorcycles and, as good or as safe as we consider ourselves, bad things happen. I admire your courage.

    Mike
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  10. Patek

    Patek Adventurer

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    Wow, I read through 18 of those pages and how the argument shifted to the US healthcare system.

    My brother-in-law is a MD and he wants to get out of practicing and go into research as all he does is fight with insurance companies and he said that is not what he went to medical school for. They deny everything and he spends more time filling out forms and arguing with them than he does treating patients.
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  11. trc.rhubarb

    trc.rhubarb ZoomSplat!

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    I've found it's an art form. Some doctors spend time to learn it and are very successful once they know what the insurance companies need/want to see. Others fight it and flounder.
    In the end, patients suffer. My choices in life led to my injuries but my permanent spinal disfigurement is a direct result of this silliness.

    My advice is to be your own advocate and don't sit back and watch things happen while thinking the dr knows what they are doing. My doctor is very good, but she's not overly practiced in insurance negotiations. I'm very lucky that my HR person has a good relationship with our insurance broker who knows how to get stuff to happen. I just wish I knew that was an option before.
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  12. RidingMann

    RidingMann In training...

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    should the doctor have a need to be versed in this practice, really?
  13. trc.rhubarb

    trc.rhubarb ZoomSplat!

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    Assuming no changes to our healthcare system; it's a matter of survival. She works for a hospital, so there is a never-ending supply of patients.

    Doctors that run their own practice need these skills or staff that can handle it on their behalf. Unfortunately, a lot relies on the specific words the doctor uses and the specific test they ask for.
    For example, a couple pages ago, I was trying to get an MRI. Cervical through Sacral. The lab they prefer to use has 3 codes to do this. a cervical/thoracic, a thoracic/Lumbar, and a lumbar/sacral.
    It was easier for her to request all 3 than to find a code for all of them at once. This resulted in the insurance company admins flagging it because "who needs 3 mris? this surely must be a mistake or fraud" and so I was delayed quite some time. Had she requested just one test, it may not have been a problem. Her reason for the test was based on my prior recent history and the ongoing tingling, pain, etc... so knowing the insurance company has my current history, she put down why we need it now... They don't review history, they review the request only. So I failed the test as I've not done other things yet that proved a need. This then required one-on-one with the insurance doc and my doc. and on and on and on...

    So, it's an unfortunately requirement for patient treatment, care and running a successful practice. Either that or you don't accept insurance. I have one doctor that says they will submit on your behalf, but it's up to you to ensure that payment happens and you accept responsibility for treatment costs regardless. She's a good doctor so I accept that. I've seen this quite a bit while seeing a very busy oncologist as well. They actually charge for dealing with insurance, for writing letters, etc. He was a dick, and as soon as I could, I moved on.
  14. RidingMann

    RidingMann In training...

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    This is your face plant thread. It's not place to try and change the way you feel or think but, I do not agree. I want my doctor to treat me just as he was educated and trained to do. Red tape from insurance companies should have no bearing on treatment...
    I hope that your recovery goes well!
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  15. trc.rhubarb

    trc.rhubarb ZoomSplat!

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    Thank you and while I agree wholeheartedly, my doctors lack of skill in that department has cost me the equivalent of no treatment at all. If we sum up everything done, outside of cleanup and stiches in the ER, it equates to monitoring because we weren't successful in obtaining insurance buyoff on the only treatment that could have fully restored function without massive risk. So all the CT, Xrays, the MRI, bloodwork, tons of visits and evaluations resulted in no treatment whatsoever. At this point, I'm just glad I am fairly functional most days and will hopefully will continue to recover further.

    I think the reality is that change is needed and that's a topic for CSM

    I do appreciate the conversation and the well wishes :beer